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Title: The Diving Bell and the Butterfly: A Memoir of Life in Death by Jean-Dominique Bauby, Jeremy Leggatt ISBN: 0-375-70121-4 Publisher: Vintage Books USA Pub. Date: 01 July, 1998 Format: Paperback Volumes: 1 List Price(USD): $11.00 |
Average Customer Rating: 4.65 (78 reviews)
Rating: 5
Summary: A captivating testament to a spirit that could not be broken
Comment: At the age of 43, Jean-Dominique Bauby (former editor-in-chief of the French magazine "Elle") suffered a massive stroke that left him almost completely paralyzed. His mind, however, remained intact. A victim of "locked-in syndrome," the only part of his body that he could still move was his left eyelid. Unable to communicate in any other way, he and his therapists devised a system whereby Bauby could blink out what he wanted to say, letter by letter. In this way, he managed to compose his memoir, with his speech therapist carefully transcribing Bauby's coded blinks. The book was published just two days before Bauby's death in 1996.
I became aware of this book when I learned that Johnny Depp will star in a movie of "The Diving Bell and the Butterfly" in 2006 (playing Bauby himself). Intrigued, I decided to read up beforehand. What I discovered was a poignant and inspirational expression of a man with an incredibly strong spirit. Though he expresses frustration and sadness at his condition, Bauby does not wallow in the trap of self-pity. His observations of the world are sharpened and given new perspective as he is forced to deal with paralysis. Bauby is even able to look at elements of his predicament with a wry sense of humor, as in the time a nurse woke him up to ask if he wanted a sleeping pill.
The book is not written as a linear story - in fact, we don't read about the day of Bauby's stroke until near the end - but rather it is a collection of vignettes. In some he offers insights and observations of his daily life in the hospital. In others he reflects on various memories, with both fondness and, at times, regret for missed opportunities. And in still other chapters he shares with us the dreams he has had since his stroke. He also reflects on his last day as a normally functioning person, and on some of the plans he had in his life before - plans that he never got to fulfill. Bauby has dedicated the book to his children, and it is clear that he misses being a regular father.
"The Diving Bell and the Butterfly" is a very easy read, and well worth the time. It is only 132 pages in length, but I can't help imagining just how tedious it must have been for Bauby to blink out even one page, let alone over one hundred. That, and the amazingly beautiful, fluent language in which the book is written has given me an overwhelming respect for this remarkable man. We have here a window into a soul that refused to die, even while trapped within a body that could no longer move. I would heartily recommend this book to anyone, as it sparks in the reader a more complete awareness of the world and a fuller appreciation for the little things in life.
Rating: 5
Summary: life worth living
Comment: In December of 1995, Jean-Dominique Bauby, 43 year old editor in chief of Elle magazine in France, suffered a stroke which severely damaged his brain stem. After several weeks in a coma, he woke to find that he was one of the rare victims of a condition called "locked-in syndrome" or LIS, which had left his mind functioning but his body almost completely paralyzed. In a perverse sense he actually got fairly lucky because, unlike most victims, he was still able to move one eyelid. This allowed him to work out, with a speech therapist, a system of communication which entailed winking as someone slowly read through the alphabet. By using this code, he could painstakingly spell out words, sentences, paragraphs and, finally, this memoir.
The title of the book refers to the metaphors he uses to describe his situation. The physical paralysis leaves him feeling as if he was trapped within a diving bell, as if there is constant pressure pinning his body into immobility. However, at the same time, his mind remains as free as a butterfly and it's flights are as random. In fact, he calls the chapters of this book his "bedridden travel notes" and, indeed, they eloquently relate his journey through memory.
Although Bauby's situation is obviously unique, this book has universal resonance because his condition is itself an apt metaphor for the human condition. It is the essence of Man's dilemma that our infinitely perfectible minds are trapped within such weak containers of flesh and blood. For most of us, at most times, this frustrating dichotomy, between that which makes us godlike and that which makes us mortal, lurks in the background; but the author has it thrust rudely into the foreground, where it necessarily dominates his existence. This makes it all the more remarkable that Bauby is able to "write" about his life with such great humor and generosity of spirit and with so little bitterness.
Public opinion surveys reveal an interesting contrast in modern opinions on the "right to die." Contrary to the accepted wisdom, the so-called right is favored by those who are young and healthy, but opposed by those who are old and sick. The very premise which underlies such a right is the belief that the quality of life experienced by the aged and the ill is so inadequate that they would willingly choose death instead. In fact, the evidence suggests that--despite the anecdotal horror stories with which all of us are familiar--people generally cling to life even in the face of suffering which seems unendurable to the well.
Bauby's book, for all the horror that we naturally feel at his status, is wonderfully optimistic and life affirming. Sure, there are a few moments of well earned self pity, but they are almost completely drowned out by the author's enduring hopes and dreams and memories. Jean-Dominique Bauby died two days after this book was published, but in it's pages, he left behind one of the great testament's to the splendor and majesty of the human spirit. In these times when people tend to complain about the pettiest matters, he reminds us that even when life is genuinely difficult, it is still quite beautiful and invaluable and well worth living.
GRADE: A+
Rating: 3
Summary: Suffocating!
Comment: This book was like being underwater.... with no life support. Death was a blessing.
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Title: Waist-High in the World: A Life Among the Nondisabled by Nancy Mairs ISBN: 0807070874 Publisher: Beacon Press Pub. Date: 01 January, 1998 List Price(USD): $15.00 |
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Title: At the Will of the Body: Reflections on Illness by Arthur W. Frank, Arthur Frank ISBN: 0618219293 Publisher: Mariner Books Pub. Date: 16 July, 2002 List Price(USD): $13.00 |
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Title: The Lost Art of Healing by B. Lown ISBN: 0345425979 Publisher: Ballantine Books Pub. Date: 01 February, 1999 List Price(USD): $14.95 |
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Title: Le Scaphandre Et Le Papillon by Jean-Dominique Bauby ISBN: 2266080598 Publisher: Pocket (FR) Pub. Date: January, 1999 List Price(USD): $13.95 |
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Title: In the Country of Hearts: Journeys in the Art of Medicine by John Stone ISBN: 0807121045 Publisher: Louisiana State University Press Pub. Date: 01 November, 1996 List Price(USD): $17.95 |
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