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Title: Parents Cry Too! by Lillian Sparks ISBN: 0-89221-182-2 Publisher: New Leaf Pr Pub. Date: 01 December, 1990 Format: Paperback List Price(USD): $8.95

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Average Customer Rating: 5 (2 reviews)

Rating: 5
Summary: Life for a child with Epidermolysis Bullosa
Comment: Bryon has Recessive Dystrophic Epidermolysis Bullosa... the same exact condition my son has. RDEB is a rare skin disorder where the skin is so fragile a minimum scratch causes 2nd degree burn-like wounds, it is a devastating condition with no cure that does not improve with age.
In this book Lillian continues in detail her life with Bryon that she started with the book 'Tough Cookie'. It was a moving book and a must to read for any EB parent and their loved ones.

Rating: 5
Summary: This moving story helped me with my own medical condition...
Comment: "Bryon Sparks has "Epidermylosis Bullosa Dystraphica Recessive", and as a result he lives in a world of constant pain and torture since the day he was born! His skin blisters and peels, even at the slightest touch. The struggles, hopes, and tears are all part of this heartwarming story. As parents, we try to protect our children from hurtful experiences and when pain comes, we attempt to soothe the trouble. When you look into the face of an impossible situation and your helplessness pierces your soul, you discover that parents cry too!" Read this to realize you are only one of many with medical problems and how God can help us deal with daily pain and concerns thru scripture and prayer.