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Title: Positive Options for Antiphospholipid Syndrome (APS): Self-Help and Treatment by Triona Holden, Graham Hughes, Robert Roubey ISBN: 0-89793-409-1 Publisher: Hunter House Pub. Date: March, 2003 Format: Paperback Volumes: 1 List Price(USD): $12.95 |
Average Customer Rating: 4 (2 reviews)
Rating: 4
Summary: Finally, there's "a" book on APS!
Comment: Two years ago, after two clots while only 32-33 years old, I was diagnosed with APS. I've really searched and struggled to find information on this topic, even reading and re-reading through medical journals my doctor gave me when she couldn't find patient information to answer my questions. There exists no adequate information on this topic online. This book's content is limited but clear and concise and far exceeded my expectations. The case studies are extremely helpful. One story even clarified some critical misinformation I've carried that could have led me to my third clot! I found some parts opened my eyes (and were emotionally painful) but most were hopeful and optimistic. Most importantly, it did for me what I think the writer intended... it revived my motivation to be my own advocate, to not surrender responsibility for my medical condition to anyone (including doctors) and never stop educating myself. The only improvement to content that I could suggest is the addition of practical suggestions on prevention of symptoms and dealing with it.
Rating: 4
Summary: Pleasantly Surprised with the Info Here!
Comment: When I was diagnosed with antiphospholipid antibodies earlier this year, I was unable to find much more information on the syndrome than a page or two on an outdated website, or the same blahbittyblah medical terminology. When I tripped over this book, I ordered it, figuring it would be little more than a glorified pamphlet.
I was pleasantly surprised! While it is by no means a textbook on APA and the ramifications of living with the syndrome, it had more information on the condition than I have found ANYWHERE, including what I learned from my doctors. I initially turned straight to the recurrent miscarriages section of the book (the book is divided into chapters on the different manifestations of APA: migraines, heart conditions, recurrent miscarriages, strokes, etc.) as that is how APA affects me, but I later found the other chapters to be just as informative, even though I hadn't thought they applied to my situation.
All in all, I was very pleased with this book. It exceeded my expectations!
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