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Title: Children With Spina Bifida: A Parent's Guide (The Special Needs Collection) by Marlene Lutkenhoff, Marlene Lutkenhof ISBN: 0-933149-60-3 Publisher: Woodbine House Pub. Date: January, 2003 Format: Paperback Volumes: 1 List Price(USD): $16.95

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Average Customer Rating: 5 (2 reviews)

Rating: 5
Summary: Must have.
Comment: Great help as new parents of a child with SB. Easy to read and well organized.

Rating: 5
Summary: "Must" reading for all parents of spina bifida children.
Comment: Children With Spina Bifida: A Parent's Guide offers parents and family members the background, guidance, and supported needed to make proactive, informed decisions regarding a child's complex medical needs and other important considerations. Provided is a complete and compassionate overview of the symptoms of spina bifida; prenatal diagnosis; neurosurgery; bowel management; physical therapy, braces, and casts; nurturing an emotionally healthy child; education; causes of spina bifida; working through grief; urological concerns; orthopedic concerns; childhood development; parenting issues; legal rights and insurance. Of special interest is a chapter on adults with spina bifida written by a physician with spina bifida; and a chapter by a by a young woman with spina bifida who writes about her journey toward independence. Children With Spina Bifida: A Parent's Guide is "must" reading for all parents and family members with a child or loved one afflicted by spina bifida.

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