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Title: Scleroderma: A New Role For Patients and Families by Michael Brown ISBN: 0-9717524-0-0 Publisher: Scleroderrma Press Pub. Date: March, 2002 Format: Paperback List Price(USD): $15.95 |
Average Customer Rating: 3.83 (6 reviews)
Rating: 5
Summary: Reviewed by SclerodermaSupport.com
Comment: This is a book from someone who has traveled the route with his wife to learn about scleroderma and to obtain quality medical care and necessary assistance. Many avenues they traveled are shared in detail. The author clearly wrote this book in an aim to assist others taking the same path he, his wife and his family were forced to endure.
Rating: 5
Summary: Just what I was looking for!
Comment: I got this book for my mother who was diagnosed with scleroderma 5 months ago. It answered questions that we hadn't even thought of yet. The chapters on finding the right doctor and getting information on the Internet were the best. This is a great resource.
Rating: 1
Summary: Useless except for U.S. patients
Comment: I found this book completely useless, although I suppose it may be helpful to U.S. patients. It seemed to me to be a catharsis for the writer, nothing else. As a patient suffering from scleroderma, I wasted my money, and the book ended up in the garbage after I had looked through it. I think it should be made clear that this is not helpful to patients or their families living outside the U.S.
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