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Title: The First Year--Fibromyalgia: An Essential Guide for the Newly Diagnosed (The First Year Series) by Claudia Craig Marek ISBN: 1-56924-521-5 Publisher: Marlowe & Company Pub. Date: May, 2003 Format: Paperback Volumes: 1 List Price(USD): $15.95 |
Average Customer Rating: 4.86 (14 reviews)
Rating: 5
Summary: A great road map for understanding this confusing condition
Comment: Claudia Marek has surely hit a home run with this her latest book! I would have given anything to have had this information at my fingertips 30 years ago when fibromyalgia began to rear its ugly head in my life. Not only does she give coping strategies for dealing with all aspects of this life robbing disease for the sufferer Ms. Marek also shares ways of teaching those who love or work with us to understand, accept and how to help us. How I wish I had had this information when everyone around me thought I was crazy! This book is packed with great ideas that really help anyone with FMS to actually feel better and rejoin life! Well done Ms. Marek! Well done!
Rating: 5
Summary: Well written and full of useful info!
Comment: As the title indicates, this book is geared towards those who are new to fibromyalgia and are facing what I wrestled with when I was first diagnosed: eight million questions about what was happening to me, what do about it, and what my diagnosis meant to me and those around me. Ms. Marek does an excellent job of providing a comprehensive overview of everything I remember wanting to know the day a doctor told me I was one of the millions with fibromyalgia. How could I reduce and cope with pain and fatigue? Why in the *heck* was my body doing so many weird things? Did anyone else feel this way? How could I continue to live my life?
In spite of the book's orientation towards the newly diagnosed, I learned things I didn't know. Therefore, even those who have lived with this illness for a while can benefit from this book. I know I'll find it to be a useful reference to return to, and am happy to have it on my shelf.
What did I most love about this guide? The writing is clear and easy to follow. I'd describe it as conversational, as if Ms. Marek was having a private discussion with me. She illustrates the practical information with her personal experience (she too has fibromyalgia), as well as with the experiences of others.
This book is well-organized, and broken into manageable sections with section headings. If you are heavily fogged, you can read a little, bookmark it, come back to it later, and use the headings to remind yourself of what you were reading.
In addition to a wealth of practical information about managing fibromyalgia, Ms. Marek talks about the emotional aspects of living with the disease. She discusses how it affects not only the person with this illness, but those around them. She addresses things like denial and acceptance, and the role those play in our lives.
So many books I've read mainly talk about our physical symptoms and what to do about them. They hardly mention what it feels like emotionally to live with fibromyalgia. Ms. Marek speaks to the human being underneath the illness...the person who is struggling to maintain their identity in the face of a body that no longer works the way it used to.
In summary, this is a solid, well-written book that I wish someone had handed to me when I was diagnosed. As the title says, this is an Essential Guide.
Rating: 5
Summary: Wonderful help when needed
Comment: This book was a wonderful help for me, being 23 and diagnosed with FMS on top of about a dozen other very painful joint and spine disorders that I have dealt with over the years.
I wish I had this book given to me in the doctor's office after I was sent home knowing I had a silent disease, it would have helped so much. Although at that point I could no longer hold a book in my hands, let alone feed myself. That is the only negative thing I have about this book, since it is written as a day by day guide at first, there was no way I could have read all that information in even the first few months after diagnosis, I was in so much pain and sleeping all the time, I could barely read a page a day without collapsing from pain and exaustion.
Now I have finally caught up to the correct month, month 8, and this book describes me to a 'T'. I kept wondering what all was Fibro, and what was wasn't back in the beginning, and everything is described that I experience, just as if myself was writing it. Being so young and having so many misterious things wrong, this was such a great support, since I knew there were other women going through everything I had to deal with daily.
Amazingly I have gotten back to my regular life of being a professional bellet dancer. It took lots of determination, most days it was difficult to dress myself, let alone rehearse and drive the 30 minutes to the studio. But I have done it, and the pain is still there. Yes, I am still on Vicodin, muscle relaxers, and sleeping pills, but it is amazing, the transformation that took place once I pushed myself back into my old schedule. I am still very weak, very sleepy and painful, and very unpredictable, but I am living, and dancing, and taking every day one step at a time....
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